Flares in Axial Spondyloarthritis – Treating with Effective Resources (FASTER) feasibility study.

University of Warwick

About the Project

The ability for patients to promptly attend Rheumatology clinics when required has recently become more important with the NHS’s introduction of Patient Initiated Follow-Up (PIFU), recommending the scaling back of routine follow-up, instead placing the onus on the patient to decide when they need to be seen. As Rheumatology services transition to PIFU, patients need to be empowered and supported in identifying when they are in flare, a process which can be extremely variable in experience, duration, and pattern. A potential mechanism to identify such flares is through collection of electronic Patient Reported Outcome Measures (ePROMs), accessible by both patients and clinical teams. We need an ePROM to characterise the care needs of patients with Axial Spondyloarthritis (axSpA) – a chronic, inflammatory condition -, who are experiencing a disease flare, and hence act as a trigger for accessing timely and targeted care. The proposed research study will deliver the essential development work required to support the future integration of ePROMs into care to support the timely identification of disease flares in this population and subsequent access to care.

Study Aim: To complete essential developmental and exploratory research with which to underpin and inform the future integration of ePROMs into rheumatology practice, supporting timely patient-initiated follow-up in AxSpA patients who flare.

Anticipated objectives:

  1. To systematically review published literature on the use of ePROMs in clinical practice settings to inform ePROM completion and feedback mechanisms.
  2. To qualitatively explore the experience of ePROMs ‘routine completion’ and feedback (as part of a longitudinal study) with patients and healthcare professionals.
  3. To psychometrically evaluate the comparative measurement properties of selected ePROMs completed by patient participants in a parallel study, providing guidance for the interpretation of score change (minimal clinical and flare important differences).
  4. To inform the development of an access to care ‘traffic light system’ based on an understanding of important score change.
  5. To describe the quantitative presentation of ‘flares’ on the domains of a multi-domain measure of AxSpA specific quality of life (the EASiQoL).

Enquiries:

Prof Kirstie Haywood or Prof Jon Packham 

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